The settings on this blog do not allow me to go back and re-edit previous bog entries. Or I am just in need of computer literacy. I misspelled Tammie Johnsons name in a previous entry.
Her mother named her with this wonderful spelling. She is truly a great kidney transplant coordinator and all of her patients with the last name ending in " L" are lucky to have her.
Special Thanks also to Dr. McPheil of Vascular Cardiology. Had a wonderful talk to him today and felt redeemed on some previous business.
Also thanks to Dr. Cosio, heading the transplant rounds at RMH this week.
her blood presure medication has been recently changed based upon his observation.
We will anticipate progress of being able to maintain consistent doses.
Thursday, March 27, 2008
Wednesday, December 5, 2007
Been real busy, but will be back soon to update you
We have a new nurse coordinator again, Tammy Johnson. A fine person, very understanding and thorough. We recently had an issue with my mom's prograf level. Tammy was very on the ball to make sure we were informed and our minds put to ease.
On another page, my research shows that
senna can possibly interfere with PTINR levels and may not be good for prolonged use by kidney transplant patients because it could cause dehydration.
Dehydration as you know, bumps up creatnine readings.
I am trying to research if Glucomann fiber is safe for kidney transplant patients to take. It is a good fiber for diabetic patients. I also learned that Omega 3 fish oil, Cinnamon, and Glucosamine and Condroitin is safe for kidney transplant patients. Mom has been on it for a month now. Although docs are not to verbal on what could be the potential benefit. Mom has noticed a reduction in osteo -arthritis symptoms. Kidneys like cinnamon. Cinnamon can drop your blood sugar so be careful.
On another page, my research shows that
senna can possibly interfere with PTINR levels and may not be good for prolonged use by kidney transplant patients because it could cause dehydration.
Dehydration as you know, bumps up creatnine readings.
I am trying to research if Glucomann fiber is safe for kidney transplant patients to take. It is a good fiber for diabetic patients. I also learned that Omega 3 fish oil, Cinnamon, and Glucosamine and Condroitin is safe for kidney transplant patients. Mom has been on it for a month now. Although docs are not to verbal on what could be the potential benefit. Mom has noticed a reduction in osteo -arthritis symptoms. Kidneys like cinnamon. Cinnamon can drop your blood sugar so be careful.
Saturday, May 5, 2007
We Need A Foot Pump
The arterial flow pump now costs $4,000 seeking a way to get this neccesary piece of equipment for mom's survival and well being. Wish us luck. By the way we now have another new transplant nurse coordinator. Will give you details as soon as we know more.
Thursday, April 12, 2007
Mom's Foot Continuing To Heal
We had a little bout with her being allergic to a potential material in her special footware.
She developed some blisters. Thanks to Dr. Kavros, she is healing.
She is continuing to have routine boot therapy every 3-4 weeks for 2-3 days at a time at Mayo.
We decided to maintain her on on this therapy due to the overall benefit of the circulation.
Her creatnine clearance is 1.0 ! Amazing !
Prior to she was between 1.2 - 1.4 and had dramatic rises at times. Since boot therapy, her creatnine has remained stable between 1.0-1.2.
It is a pleasure talking to Barb, nurse coordinator and hearing the good news!
She developed some blisters. Thanks to Dr. Kavros, she is healing.
She is continuing to have routine boot therapy every 3-4 weeks for 2-3 days at a time at Mayo.
We decided to maintain her on on this therapy due to the overall benefit of the circulation.
Her creatnine clearance is 1.0 ! Amazing !
Prior to she was between 1.2 - 1.4 and had dramatic rises at times. Since boot therapy, her creatnine has remained stable between 1.0-1.2.
It is a pleasure talking to Barb, nurse coordinator and hearing the good news!
Saturday, March 3, 2007
New Nurse Coordinator and a problem with PTINR test
Well We have had a change of order and have a new transplant nurse coordinator, Barb Giles ( I hope I spelled her name right). She is the third coordinator we have had in one year. Mayo Clinic is very wonderful about following up on their transplant patients. One of the reasons why my mom selected to transfer her waiting points to Mayo is because they really have saved her life time and time over.I have a good friend that had a rejection episode and her Illinois transplant hospital did not help her, she was told to see her local nephrologist. By the time the rigamaroll all finished, her organ rejected and she was back on PD ( peritoneal dialysis again). Yes, it is hard staying in Minnesota for a long time, but every employee at Mayo Transplant that we have met has been extremely diligent about helping my mom with the illness epidodes she has had after transplant.
Mayo has a wonderful system of having a nurse coordinator watch your Prograf level and other blood test results and does a brief consult by phone each month. This is a wonderful privelege to have a nurse coordinator help us. it is comforting to know that we just starting talking to Barb and she has been so caring and helpful. We feel very lucky for mom to be watched over by such a wonderful person.
We went to Gonda 4 for a PTINR test and the machine was unable to register her result. Mary Ellen was so throrough about sending her down to the lab and she constantly watched the computer to give her a result. We were relieved to know she was on the safe side at 2.0
Mayo has a wonderful system of having a nurse coordinator watch your Prograf level and other blood test results and does a brief consult by phone each month. This is a wonderful privelege to have a nurse coordinator help us. it is comforting to know that we just starting talking to Barb and she has been so caring and helpful. We feel very lucky for mom to be watched over by such a wonderful person.
We went to Gonda 4 for a PTINR test and the machine was unable to register her result. Mary Ellen was so throrough about sending her down to the lab and she constantly watched the computer to give her a result. We were relieved to know she was on the safe side at 2.0
Sunday, January 28, 2007
A new month and good news!
My mothers foot has completely healed as of January 23rd,2007. We got the word at 9:43 am. a website is in the works to show off the before and after pictures. Many of the pictures of graphic at first but the healing is proof that amputation was not the correct alternative for her and circulation was the answer to my mother's prayers. She has a full foot to walk on and three beautiful toes left on her right foot.
Wednesday, December 20, 2006
Attention Mayo Clinic Employee Administration/ Human Resources
Dated February 13,2006
From: Baidwatie Rita Lecoin
To Whom It May Concern,
My name is Baidwatie Rita Lecoin. I have been a patient at Mayo Clinic since May of 2004. Previous to my coming to the clinic, I have had many traumatic experiences at many of the “top” Illinois hospitals. I am writing this letter to express gratitude to all of the excellent physicians and employees who have greatly contributed to my healing and recovery.
In 2005 I participated in the “Stories of The Heart Program”. I was honored to speak to all of the Mayo and St. Mary’s employees to show them that they were the reason why I was still alive and recovering. I was invited by Dr. Sharonne Hayes and Nurse Practitioner Dalene Bott-Kitslaar. Dr. Sharonne and Dalene were instrumental in helping my heart get better. My ejection fraction was first 15% when I came to Mayo and now it is a normal 65% ! Their efforts made it possible for me to be placed on the kidney transplant list. Her secretary Bonnie was always very welcoming in all of my visits to Mayo. At the “Stories of The Heart” I met two fantastic employees that really made me feel like family. Charlene Tri and Cathy Atwel pushed me around in my wheelchair and catered to my every need. They ran and conducted the program in such an outstanding manner, I felt privileged to take part in the event with them at my side.
They are an excellent asset to your cardiovascular team. Doug Parks , Dr. Phil ( host), Dr. David Hayes ( moderator), Phil McAteer and Traci Klein in communications were also very caring and did a magnificent job in the program.
As you read on in this letter you will see so many more people I wish to thank. I am asking that no one go unnoticed. I want to preframe you that I am not just writing down all of the names of the people who took care of me. Rather I am noting the genuine exceptional care given by all of the individuals named in this letter. Each person that I am about to list has gone above and beyond the call of their duty. They took every measure to execute the highest care I have ever seen in my entire life. I worked in healthcare as a certified nurses aid/ phlebotomist for over 25 years. I have seen many healthcare employees and physicians. All of the people named in this letter are simply the best.
They are an asset to your clinic. Through their efforts, they have enhanced the quality of my life and I am sure of many, many others who have met them.
I feel truly blessed to have met each of these individuals. I will never forget them.
They will always be held in my highest regard.
Eisenberg Nephrology:
Dr. Amy Williams
Charlene ( secretary)
Thank You for always taking the time to hear my concerns, for riding through my tests with me, and for explaining matters about my renal health so well.
Cardiovascular:
Dr. Raymond Shields
Thank You for saving my life.!
Page Two Continued
Vascular Radiology
Patty Engel RN/PE
Thank You for making me feel at ease and doing my test so well.
During my 7-week stay for kidney transplant as of 12/13/05
Kidney Transplant Surgeon
Dr. Mikel Prieto
Thank You for saving my life !
Intensive Care Unit Nurses
Jessica Stanley RN 12/14 nights
Heather Hoke RN, 12/14 days
Jean Wiersgalla – cath team
Katie Truman, RN - 12/14 days
Thank you for your timely care and attention to detail.
Infusion Therapy Center
Richard Allen RN
Ed Gick RN
Sheila Rudolph RN
Ruth Seaquist RN
Dr. Rick Nishimara
You went above and beyond the call of duty with my temp-cath care and iv treatments.
Thank you for making me feel like you were taking care of a cherished family member. This was more than I could ever hope for. Every day I met a warm wonderful face with kind supportive words. You made me feel so at ease with my treatments and care. Thank You !
ALL OF CHARLTON DESK LA BLOOD DRAW
I am a difficult stick. Every morning, You always got it right the first time and I never felt any pain. Thank you !
Kidney Tranplant Doctors Charlton Desk 10A
Dr. Timothy Larsen M.D.
Dr. Patrick Dean M.D
Dr. Burcin Tanser M.D.
Dr. Doerr
Thank You for saving my life ! Thank you for treating me so well as a patient during my emergency issues at Rochester Methodist Transplant 10-2.
Dr. Amer Hatem
Thank you for your going out of your way to lend an extra helping hand to me and for your prompt follow though with my results.
Dr. Gregory Merten
Thank you for taking the time and attention to answer my questions and concerns
thank you for your prompt follow through and care.
Dr. Latonya Hickson
Thank you for your meticulous evaluations and insightful appointments. A pleasure to have you partcipate in my care.
Physician Assistants
K. Francois, PA
T. Fettes, PA
Thank you for all of your time and hard work during my recovery.
Transplant Nurse Coordinators
Charise Bauer RN, BAN
Deb Dicke-Henslen RN,BSN
Norma Sherwood RN,BSN
Thank You for always taking the time to speak to me and comfort me. You are all genuinely sweet and caring nurses.
All 10-2 Nurses involved in my patient care.
Thank you for helping me through my recovery. I genuinely appreciate all of you
Who assisted me during my stay 12/13 – 12/23 ( and most recently in February 2006). I was not able to get all of your names. For those who took care of me and I did not get your name, I am sorry.
These were the names that I could remember during my care and recovery. All of the nurses treated me very well and made me feel like I was being well taken care of. I was so weak and sick and all of you took care of me and did not hesitate to go the extra mile to help me.
Sarah Leisseter
Leah Haehn
Stacey Hecker
Jan Clark
Alexandra Amick
Lora Swank
Kaye Lindberg
Marylin
Tracey
Jasmin
. The story of my health challenges and recovery is in the makings for a case study book. My daughter is currently working with a publisher to get the publication ready for print and distribution. It has been a long and winding road. Mayo Clinic has been the destination of well being for all of my health concerns. Every individual that I meet who is ill or well I tell them to come to Mayo clinic. You will be treated like royalty.
With Eternal Gratitude,
Ms. Baidwatie Rita Lecoin
Dated February 13,2006
From: Baidwatie Rita Lecoin
To Whom It May Concern,
My name is Baidwatie Rita Lecoin. I have been a patient at Mayo Clinic since May of 2004. Previous to my coming to the clinic, I have had many traumatic experiences at many of the “top” Illinois hospitals. I am writing this letter to express gratitude to all of the excellent physicians and employees who have greatly contributed to my healing and recovery.
In 2005 I participated in the “Stories of The Heart Program”. I was honored to speak to all of the Mayo and St. Mary’s employees to show them that they were the reason why I was still alive and recovering. I was invited by Dr. Sharonne Hayes and Nurse Practitioner Dalene Bott-Kitslaar. Dr. Sharonne and Dalene were instrumental in helping my heart get better. My ejection fraction was first 15% when I came to Mayo and now it is a normal 65% ! Their efforts made it possible for me to be placed on the kidney transplant list. Her secretary Bonnie was always very welcoming in all of my visits to Mayo. At the “Stories of The Heart” I met two fantastic employees that really made me feel like family. Charlene Tri and Cathy Atwel pushed me around in my wheelchair and catered to my every need. They ran and conducted the program in such an outstanding manner, I felt privileged to take part in the event with them at my side.
They are an excellent asset to your cardiovascular team. Doug Parks , Dr. Phil ( host), Dr. David Hayes ( moderator), Phil McAteer and Traci Klein in communications were also very caring and did a magnificent job in the program.
As you read on in this letter you will see so many more people I wish to thank. I am asking that no one go unnoticed. I want to preframe you that I am not just writing down all of the names of the people who took care of me. Rather I am noting the genuine exceptional care given by all of the individuals named in this letter. Each person that I am about to list has gone above and beyond the call of their duty. They took every measure to execute the highest care I have ever seen in my entire life. I worked in healthcare as a certified nurses aid/ phlebotomist for over 25 years. I have seen many healthcare employees and physicians. All of the people named in this letter are simply the best.
They are an asset to your clinic. Through their efforts, they have enhanced the quality of my life and I am sure of many, many others who have met them.
I feel truly blessed to have met each of these individuals. I will never forget them.
They will always be held in my highest regard.
Eisenberg Nephrology:
Dr. Amy Williams
Charlene ( secretary)
Thank You for always taking the time to hear my concerns, for riding through my tests with me, and for explaining matters about my renal health so well.
Cardiovascular:
Dr. Raymond Shields
Thank You for saving my life.!
Page Two Continued
Vascular Radiology
Patty Engel RN/PE
Thank You for making me feel at ease and doing my test so well.
During my 7-week stay for kidney transplant as of 12/13/05
Kidney Transplant Surgeon
Dr. Mikel Prieto
Thank You for saving my life !
Intensive Care Unit Nurses
Jessica Stanley RN 12/14 nights
Heather Hoke RN, 12/14 days
Jean Wiersgalla – cath team
Katie Truman, RN - 12/14 days
Thank you for your timely care and attention to detail.
Infusion Therapy Center
Richard Allen RN
Ed Gick RN
Sheila Rudolph RN
Ruth Seaquist RN
Dr. Rick Nishimara
You went above and beyond the call of duty with my temp-cath care and iv treatments.
Thank you for making me feel like you were taking care of a cherished family member. This was more than I could ever hope for. Every day I met a warm wonderful face with kind supportive words. You made me feel so at ease with my treatments and care. Thank You !
ALL OF CHARLTON DESK LA BLOOD DRAW
I am a difficult stick. Every morning, You always got it right the first time and I never felt any pain. Thank you !
Kidney Tranplant Doctors Charlton Desk 10A
Dr. Timothy Larsen M.D.
Dr. Patrick Dean M.D
Dr. Burcin Tanser M.D.
Dr. Doerr
Thank You for saving my life ! Thank you for treating me so well as a patient during my emergency issues at Rochester Methodist Transplant 10-2.
Dr. Amer Hatem
Thank you for your going out of your way to lend an extra helping hand to me and for your prompt follow though with my results.
Dr. Gregory Merten
Thank you for taking the time and attention to answer my questions and concerns
thank you for your prompt follow through and care.
Dr. Latonya Hickson
Thank you for your meticulous evaluations and insightful appointments. A pleasure to have you partcipate in my care.
Physician Assistants
K. Francois, PA
T. Fettes, PA
Thank you for all of your time and hard work during my recovery.
Transplant Nurse Coordinators
Charise Bauer RN, BAN
Deb Dicke-Henslen RN,BSN
Norma Sherwood RN,BSN
Thank You for always taking the time to speak to me and comfort me. You are all genuinely sweet and caring nurses.
All 10-2 Nurses involved in my patient care.
Thank you for helping me through my recovery. I genuinely appreciate all of you
Who assisted me during my stay 12/13 – 12/23 ( and most recently in February 2006). I was not able to get all of your names. For those who took care of me and I did not get your name, I am sorry.
These were the names that I could remember during my care and recovery. All of the nurses treated me very well and made me feel like I was being well taken care of. I was so weak and sick and all of you took care of me and did not hesitate to go the extra mile to help me.
Sarah Leisseter
Leah Haehn
Stacey Hecker
Jan Clark
Alexandra Amick
Lora Swank
Kaye Lindberg
Marylin
Tracey
Jasmin
. The story of my health challenges and recovery is in the makings for a case study book. My daughter is currently working with a publisher to get the publication ready for print and distribution. It has been a long and winding road. Mayo Clinic has been the destination of well being for all of my health concerns. Every individual that I meet who is ill or well I tell them to come to Mayo clinic. You will be treated like royalty.
With Eternal Gratitude,
Ms. Baidwatie Rita Lecoin
Subscribe to:
Posts (Atom)