Monday, May 26, 2008

Did A Book Ever Come To You ?

The past five years of my life has been quite turbulent. Along with being a mom and pursuing my profession, I have taken on the role of full- time caregiver to my mother.

She had an accident that led to End Stage Renal Disease. Her illness amplified her existing adult onset diabetes, a host of cardiac and cardiovascular issues and also she endured numerous hospitalizations after having a kidney transplant. I have spent all of this time practically living out of hospitals. Being a caregiver to your parent is no easy task. In many cases when things go wrong, and then a miracle happens to turn things around, it reinforces your faith in God many times over.

On her recent hospitalization at Mayo Clinic, She was being seen for a small infection in an ingrown toe nail on her left leg. No matter how diligent we were with care. The toe died and we were in the process of facing the amputation of a toe. Some may think it is just a toe. For those who have no idea, most hospitals when things start to happen, would rather take your entire leg below the knee to amputate instead of doing a small ray section amputation. We handpicked specialists who would be conservative with preserving life and limb. This was also her second amputation in a year period of time.

She was emotionally fearful and distraught having to go through this another time.

She was feeling sad and crying while she awaited her appointment in the nephrology department. I had momentarily left her to attend to my daughter and had returned to the waiting room to find a uniquely healthy and practically glowing couple talking to her.


Upon looking at this man and woman, they had such a spiritual presence. You could tell they walked their talk.

The man saw her waiting and offered to keep her company while she was waiting alone in her wheel chair. He quoted the book of John and referenced knowing that he needed to help his neighbor. They developed such a rapport, my mother asked the man to pray for her, that her leg may heal. His angelic wife walked forward and without hesitation, kneeled down in the crowded waiting room, and placed her hands on my mothers leg to pray for Gods healing and direction.

It was such a beautiful prayer, tears could not help but roll down from my eyes. I have often heard evangelists refer to the term of “being on holy ground”, the moment where Moses took of his slippers at the burning bush. You could feel the potency of her prayer as she spoke and I imagined the feeling was pretty close.

She stood and the couple confidently wished her well. They handed us a book

entitled, " One Hearbeat Away, Your Journey Into Eternity",

This book was written by Mark Cahill. I found this to be simply amazing because during my long drive from Illinois to Minnesota, I was listening to a religious broadcast where this very same book was being discussed. I listened to the broadcast intently.

The couple told us that they knew the author and upon reading the book we would receive a very special message that we needed to hear. Upon initially skimming the book, the title in itself you would think would tell the entire story.

We are after all, one heartbeat away between life and death. You would think by judging the cover alone, it is a book that encourages you to think about the fact that our life on this earth will end, and we need to think about after.

I have found this book to be a very interesting read. The author lives and breathes by what he states. He randomly walks up to strangers and asks them questions that get them to think about where we emanate from. He gets into intricate details on his thought process and cites specific sources of how he is not convinced of science’s explanation on how we came to be. He covers the entire spectrum from conventional thought to the King James Version of his path of discovery. The author encourages us to seek the truth as he generously shares how he came into his own light.

I believe this book found me for a reason. It was given as generous act of sharing

light and knowledge for those wishing to align a stronger connection to God.

Mark Cahill has an established track record of changing minds throughout the

world. I highly recommend this book to all, especially those who are indifferent

and confused about God . I hope this review finds you as the book found me.

Thursday, April 24, 2008

still at Mayo Clinic

We are back to look at an ischemia in the great toe on the left leg which has turned black ( gangrene). I have alos been very sick with pneumonia, with no relief in sight.
Wish us luck. Been here since 3/25/08

Thursday, March 27, 2008

Tammie Johnson- Nurse Coordinator

The settings on this blog do not allow me to go back and re-edit previous bog entries. Or I am just in need of computer literacy. I misspelled Tammie Johnsons name in a previous entry.
Her mother named her with this wonderful spelling. She is truly a great kidney transplant coordinator and all of her patients with the last name ending in " L" are lucky to have her.

Special Thanks also to Dr. McPheil of Vascular Cardiology. Had a wonderful talk to him today and felt redeemed on some previous business.
Also thanks to Dr. Cosio, heading the transplant rounds at RMH this week.
her blood presure medication has been recently changed based upon his observation.
We will anticipate progress of being able to maintain consistent doses.

Wednesday, December 5, 2007

Been real busy, but will be back soon to update you

We have a new nurse coordinator again, Tammy Johnson. A fine person, very understanding and thorough. We recently had an issue with my mom's prograf level. Tammy was very on the ball to make sure we were informed and our minds put to ease.
On another page, my research shows that
senna can possibly interfere with PTINR levels and may not be good for prolonged use by kidney transplant patients because it could cause dehydration.
Dehydration as you know, bumps up creatnine readings.
I am trying to research if Glucomann fiber is safe for kidney transplant patients to take. It is a good fiber for diabetic patients. I also learned that Omega 3 fish oil, Cinnamon, and Glucosamine and Condroitin is safe for kidney transplant patients. Mom has been on it for a month now. Although docs are not to verbal on what could be the potential benefit. Mom has noticed a reduction in osteo -arthritis symptoms. Kidneys like cinnamon. Cinnamon can drop your blood sugar so be careful.

Saturday, May 5, 2007

We Need A Foot Pump

The arterial flow pump now costs $4,000 seeking a way to get this neccesary piece of equipment for mom's survival and well being. Wish us luck. By the way we now have another new transplant nurse coordinator. Will give you details as soon as we know more.

Thursday, April 12, 2007

Mom's Foot Continuing To Heal

We had a little bout with her being allergic to a potential material in her special footware.
She developed some blisters. Thanks to Dr. Kavros, she is healing.
She is continuing to have routine boot therapy every 3-4 weeks for 2-3 days at a time at Mayo.
We decided to maintain her on on this therapy due to the overall benefit of the circulation.
Her creatnine clearance is 1.0 ! Amazing !
Prior to she was between 1.2 - 1.4 and had dramatic rises at times. Since boot therapy, her creatnine has remained stable between 1.0-1.2.
It is a pleasure talking to Barb, nurse coordinator and hearing the good news!

Saturday, March 3, 2007

New Nurse Coordinator and a problem with PTINR test

Well We have had a change of order and have a new transplant nurse coordinator, Barb Giles ( I hope I spelled her name right). She is the third coordinator we have had in one year. Mayo Clinic is very wonderful about following up on their transplant patients. One of the reasons why my mom selected to transfer her waiting points to Mayo is because they really have saved her life time and time over.I have a good friend that had a rejection episode and her Illinois transplant hospital did not help her, she was told to see her local nephrologist. By the time the rigamaroll all finished, her organ rejected and she was back on PD ( peritoneal dialysis again). Yes, it is hard staying in Minnesota for a long time, but every employee at Mayo Transplant that we have met has been extremely diligent about helping my mom with the illness epidodes she has had after transplant.
Mayo has a wonderful system of having a nurse coordinator watch your Prograf level and other blood test results and does a brief consult by phone each month. This is a wonderful privelege to have a nurse coordinator help us. it is comforting to know that we just starting talking to Barb and she has been so caring and helpful. We feel very lucky for mom to be watched over by such a wonderful person.

We went to Gonda 4 for a PTINR test and the machine was unable to register her result. Mary Ellen was so throrough about sending her down to the lab and she constantly watched the computer to give her a result. We were relieved to know she was on the safe side at 2.0